tag:blogger.com,1999:blog-21565739.post8613243214809225658..comments2023-11-24T03:11:03.331-06:00Comments on You Get What You Get: Even more about D. and The SchoolWriterGrrlhttp://www.blogger.com/profile/18311438803372879731noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-21565739.post-56422668776330566722007-05-08T18:59:00.000-05:002007-05-08T18:59:00.000-05:00And isn't it so difficult that in our mind, they a...And isn't it so difficult that in our mind, they are STILL our babies and while they LOOK huge and feel huge - in our hearts they are our little toddlers that we want to hold and cuddle. It's that disconnect in my heart and mind that I struggle with often..... And sometimes I can't help but wonder - doesn't he too feel like he needs to be held more and cared for, yet I can't because of his size? But who knows - I probably hold him more than I should because I keep thinking I don't do it enough....but in time, my back and arms will soon stop that...<BR/>Hope all is well, <BR/>Fellow Sotos momAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-21565739.post-68602017034440694682007-05-08T13:13:00.000-05:002007-05-08T13:13:00.000-05:00You are doing such a wonderful thing by documentin...You are doing such a wonderful thing by documenting your experiences. It will be such a help to parents whose children are diagnosed with Sotos Syndrome in the future. You're doing a great job!Anonymoushttps://www.blogger.com/profile/04152191802412428206noreply@blogger.comtag:blogger.com,1999:blog-21565739.post-49957415614645674442007-05-07T12:56:00.000-05:002007-05-07T12:56:00.000-05:00I'm sorry it didn't work out with the school for n...I'm sorry it didn't work out with the school for next year. But you're resourceful...you'll work something out.<BR/><BR/>And I understand about the size thing. Our guy who just turned 4 often gets mistaken for his 6-year-old brother's twin. Yikes!The Queen Mamahttps://www.blogger.com/profile/16911655962242099800noreply@blogger.comtag:blogger.com,1999:blog-21565739.post-72825648604536989872007-05-07T11:23:00.000-05:002007-05-07T11:23:00.000-05:00So sorry for what you are going through. My daugh...So sorry for what you are going through. My daughter was finally diagnosed as Sotos (despite the NSD1 findings) and the size issue is tough. We have a phenomenal school through our ISD that is doing wonders with her. I hope you can find a perfect placement for D.<BR/><BR/>BTW, I had found your blog before you commented on mine. It has really helped me not feel so alone.Denisehttps://www.blogger.com/profile/17215160638117321753noreply@blogger.comtag:blogger.com,1999:blog-21565739.post-35175826742929747582007-05-07T11:19:00.000-05:002007-05-07T11:19:00.000-05:00This comment has been removed by the author.Denisehttps://www.blogger.com/profile/17215160638117321753noreply@blogger.com